I am writing on behalf of R.'s family. R. is a 6-month
old baby girl with multiple congenital anomalies, including Teratology of Fallot and Miller-Dieker Syndrome. Because
of her complex medical problems, she requires constant supervision for airway management, increased congestion, and reflux
and seizure activity.
R.'s parents have made the loving decision to not pursue aggressive medical treatments for
R. and focus on managing distressing symptoms and keeping her comfortable. R. spends her days surrounded by her older
sisters and brother at home. R.'s mother stopped working full-time when she was born. Her father works full-time
to support the family. I'm writing to request financial assistance in the amount of $........ to cover the cost of household
Than you in advance for your support.
Pediatric Advanced Care Team
The Children's Hospital of Philadelphia